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  #26  
Old 12-20-2012, 05:40 PM
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Default Re: Daughter being admitted to the hospital.

She is doing better. No fever since the first morning. The doctors said when she does not need oxygen at night then we can go home. She has been on and off oxygen during the day but has needed it at night every night. Still has her coughing spurts but they are less frequent and does not take as long for her to get through them. When we first got here the only way for her to get better during a coughing episode was to take a breathing treatment. When we get home we will still have to do the iv antibiotics every 6 hours for a total of 2 weeks which my wife and I are familiar with. That's on top of our "normal" everyday ritual she goes through because of the cf. Thanks again to all of you and will keep you all posted.
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Old 12-20-2012, 06:02 PM
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She is doing better. No fever since the first morning. The doctors said when she does not need oxygen at night then we can go home. She has been on and off oxygen during the day but has needed it at night every night. Still has her coughing spurts but they are less frequent and does not take as long for her to get through them. When we first got here the only way for her to get better during a coughing episode was to take a breathing treatment. When we get home we will still have to do the iv antibiotics every 6 hours for a total of 2 weeks which my wife and I are familiar with. That's on top of our "normal" everyday ritual she goes through because of the cf. Thanks again to all of you and will keep you all posted.
I am glad the fever has gone, sounds like the antibiotics are doing their job. I will continue to pray for her, and also for a cure. I know they have made some major breakthroughs with CF, the cure has to be just around the corner.
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Old 12-20-2012, 09:52 PM
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She is doing better. No fever since the first morning. The doctors said when she does not need oxygen at night then we can go home. She has been on and off oxygen during the day but has needed it at night every night. Still has her coughing spurts but they are less frequent and does not take as long for her to get through them. When we first got here the only way for her to get better during a coughing episode was to take a breathing treatment. When we get home we will still have to do the iv antibiotics every 6 hours for a total of 2 weeks which my wife and I are familiar with. That's on top of our "normal" everyday ritual she goes through because of the cf. Thanks again to all of you and will keep you all posted.
May God bless her and give you and your wife comfort and the strength to deal with this challenge.
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  #29  
Old 12-20-2012, 10:04 PM
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Default Re: Daughter being admitted to the hospital.

Glad to hear she is doing better. We'll keep praying for her(and you and the Mrs.).
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  #30  
Old 12-23-2012, 07:51 AM
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Default Re: Daughter being admitted to the hospital.

Well we are home and she is doing so much better. We will be doing the IV antibiotics every 6 hrs for a total of 2 weeks. Hopefully they will get rid of it completely and she will get to go back to preschool (where she catches all this crap in the first place). I can't say thanks enough to all of you! I know this won't be the last time I ask for thoughts and prayers because this is an everyday battle w/ CF. Thank you all so much and God Bless! Have a Merry Christmas!
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Old 12-23-2012, 08:25 AM
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Well we are home and she is doing so much better. We will be doing the IV antibiotics every 6 hrs for a total of 2 weeks. Hopefully they will get rid of it completely and she will get to go back to preschool (where she catches all this crap in the first place). I can't say thanks enough to all of you! I know this won't be the last time I ask for thoughts and prayers because this is an everyday battle w/ CF. Thank you all so much and God Bless! Have a Merry Christmas!
That's great to hear she is home and doing better!!!! That will be so good for her(and you) to be home for Christmas and get back to pre-school with her friends!!!! All you have to do is say the word and you will have lots more prayers for her(she will still be on my prayer list though.)

Merry Christmas!!!!
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Old 12-23-2012, 08:43 AM
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Well we are home and she is doing so much better. We will be doing the IV antibiotics every 6 hrs for a total of 2 weeks. Hopefully they will get rid of it completely and she will get to go back to preschool (where she catches all this crap in the first place). I can't say thanks enough to all of you! I know this won't be the last time I ask for thoughts and prayers because this is an everyday battle w/ CF. Thank you all so much and God Bless! Have a Merry Christmas!
Glad to hear that she is doing better. I have a daughter who is 3 and is also in pre-school and I know how contagious that atmosphere can be because the little ones have no idea about germs and sneeze in their hand, wipe it on something and go.
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Old 12-23-2012, 10:38 AM
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Well we are home and she is doing so much better. We will be doing the IV antibiotics every 6 hrs for a total of 2 weeks. Hopefully they will get rid of it completely and she will get to go back to preschool (where she catches all this crap in the first place). I can't say thanks enough to all of you! I know this won't be the last time I ask for thoughts and prayers because this is an everyday battle w/ CF. Thank you all so much and God Bless! Have a Merry Christmas!
Best Christmas present evah!!!!!!!!!!!!!!!!!!!
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  #34  
Old 12-23-2012, 09:56 PM
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Default Re: Daughter being admitted to the hospital.

Glad your daughter is doing better and at home. Thanks for keeping us updated. More prayers coming your way .
Merry Xmas
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  #35  
Old 12-23-2012, 10:31 PM
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Default Re: Daughter being admitted to the hospital.

I am so glad that your daughter is better. Been praying for her!
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  #36  
Old 12-27-2012, 01:25 PM
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Default Re: Daughter being admitted to the hospital.

How's the home treatments going?
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Old 12-27-2012, 01:31 PM
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Well we are home and she is doing so much better. We will be doing the IV antibiotics every 6 hrs for a total of 2 weeks. Hopefully they will get rid of it completely and she will get to go back to preschool (where she catches all this crap in the first place). I can't say thanks enough to all of you! I know this won't be the last time I ask for thoughts and prayers because this is an everyday battle w/ CF. Thank you all so much and God Bless! Have a Merry Christmas!
I just saw this! Outstanding!
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  #38  
Old 12-27-2012, 03:48 PM
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Default Re: Daughter being admitted to the hospital.

I should really check this section more than I do. Anyhow, I hope all is well with your daughter and family. I have worked on the CF unit a few times (I work at a children's hospital) and I'm sure I don't have to tell you how strong those kids/young adults and families truly are.

Again, I just wanted to say that I hope you all are doing well and things are going good. I'll be sure to say a prayer for you all, too. Hang in there!

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  #39  
Old 12-27-2012, 04:30 PM
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Default Re: Daughter being admitted to the hospital.

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I should really check this section more than I do. Anyhow, I hope all is well with your daughter and family. I have worked on the CF unit a few times (I work at a children's hospital) and I'm sure I don't have to tell you how strong those kids/young adults and families truly are.

Again, I just wanted to say that I hope you all are doing well and things are going good. I'll be sure to say a prayer for you all, too. Hang in there!

You work at Children's in Cinci?

Ask about me............... I'm a legend in that place!! (Actually, Kinnet might still be the only one there from when I was because I think all the nurses are gone.)

(You could have meant Shriner's, but I think that's the only other one.)

Anyways, Cure, I'm glad that she's doing better! Prayers work!
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  #40  
Old 12-31-2012, 08:06 AM
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Default Re: Daughter being admitted to the hospital.

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How's the home treatments going?
Sorry it took so long to respond. She is still doing well. We go on the 3rd for a checkup to see if the pneumonia and or the crackles in her lungs are gone. On the 23rd she complained about her belly hurting a little so we did not hook her up to her feeding tube that night. The next day, Christmas Eve, she woke up acting fine then a little later in the day started complaining about her belly hurting again. We thought it was the antibiotics since they can cause belly trouble. But then a little later she started wincing and crying about her belly hurting. We were seconds away from taking her back to the hospital but then she fell asleep. She woke up about an hour later and had a decent bowel movement and said she felt better. We are always on edge because when she was born she had a blockage in her intestine and they had to end up removing about of foot from her small intestine because of that. She was in the hospital for her first 5 months of her life. She has had another bowel obstruction since, that did not require surgery and a year after that caught something that made her really constipated and dehydrated. So I am always worried about that happening because I can't handle her being in pain. My wife is the strongest women I know and stays with her when that stuff happens.

So long story long it seems like the antibiotics are doing their job and she seems to be doing better. She is not coughing much at all and is back to getting her normal 3 breathing treatments a day instead of 5 or 6. I will give an update on the 3rd or 4th on how the appointment went. Thanks again to you all! Much much appreciate it! Happy New Year!
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  #41  
Old 01-04-2013, 03:42 PM
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Default Re: Daughter being admitted to the hospital.

Her lungs sound clear and she got her picc line (IV) out. We ended up doing a high resolution chest CT to see if they saw anything and that came out pretty good. They and we are still debating about doing a bronchoscopy, we are leaning not to do it and they want to do it. A big THANK YOU to all of you! God Bless!

Last edited by Cure4CF; 01-26-2013 at 10:37 AM.
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  #42  
Old 01-04-2013, 03:46 PM
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Her lungs sound clear and she got her picc line (IV) out. We ended up doing a high resolution chest CT to see if they saw anything and that came out pretty good. They and we are still debating about doing a bronchoscopy, we are leaning not to do it and they want to do it. A big THANK YOU to all of you! God Bless!
That's great!!! Thank you for keeping us updated!
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Old 01-04-2013, 03:55 PM
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Default Re: Daughter being admitted to the hospital.

Glad to hear this good news!
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  #44  
Old 01-05-2013, 07:56 AM
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Default Re: Daughter being admitted to the hospital.

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Her lungs sound clear and she got her picc line (IV) out. We ended up doing a high resolution chest CT to see if they saw anything and that came out pretty good. They and we are still debating about doing a bronchoscopy, we are leaning not to do it and they want to do it. A big THANK YOU to all of you! God Bless!
That picture is amazing. She's adorable. And it sounds like still more good news. As I told you, I'm not religious, but there's a prayer chain started by my mother, and it's all over the country now. Family, friends, etc. have called all over the place.
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  #45  
Old 01-05-2013, 08:17 AM
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Oh yeah, that picture is awesome!!!! She is so cute!!! Love that smile and the thumbs up!!!
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  #46  
Old 01-05-2013, 09:25 AM
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Default Re: Daughter being admitted to the hospital.

She's so cute !

Nice to hear she's getting better !
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